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Subject: Prednisone for AA
Date: Sun, 5 Jan 2003 13:25:56 -0800
Message 1 in Discussion
Prednisone for Alopecia is not a good drug, first of all you can gain alot of weight, and second, once you get off your hair falls right back out. But on the other hand, there isn't any treatment out there that you can do without stopping. It's all pretty much the same. Once you start the treatment your on it indefinitely, no matter what treatments your using. I'm doing shots and probably will for a long time, and that's my decision - but as far as there ever being a cure, as my derm said (not in her life time). Alopecia is a cell in your body that went wacky on us, and there's nothing out there that can fix that problem right now. NAAF is working on fixing it, but how do you replace a bad cell that's part of your makeup. NAAF will be coming out with a treatment hopefully in July - and they'll probably ask some people to try it out as gene pigs, because they won't know how it will affect you until you try it. How many people here are planning on going to the NAAF conference this year in Washington D. C. ? just wondering!! I'm going to try to plan on going, anyway catchya all later. K.
Subject: Re: 7 Month Update on No-Soy Diet
Date: Sun, 5 Jan 2003 13:21:04 -0800
Dear Buddy, You need to do some research. Eating soy is eating hormones.Soy is full of plant hormones.(phytoestrogens) When you eat hormones that are not yours , they compete for space on the estrogen receptor. Hormones has everything to do with the immune function. I will post a few links in my next post, detailing how the research on soy relates to the research on alopecia. Two seperate sites... one is showing what is happenning with alopecia patients with their cd4 and cd8 t cells.......the other site is showing what genisten (a plant hormone in soy) is doing to cd4 and cd 8 t cells. They are both identical..yet one is research on soy..the other is research on alopecia. The evidence tying the 2 together is right there.
Another thing about soy is it contains phytates. PHYTATES rob your body of vital minerals..especially zinc. No amount of zinc supplements will give your body zinc if you can't absorb it. When you stop eating phytates your body will be able to absorb zinc. Everybody with alopecia is deficient in zinc. There is an absolute link here with hormones and minerals.
My next post will have some intersesting links..check them out and you decide
Subject: Re: My hair growth program!!! Its working!! :)
Date: Sun, 5 Jan 2003 12:58:04 -0800
Message 4 in Discussion
Well Patchy ~ You are absolutely right, the sun does make a big difference with AA, with me I've been getting shots also, so between the two my hair is doing pretty good right now - I went through the same thing last year, then came fall and winter so my derm mentioned to me about phototherapy (sun lamp) during these nasty months. I went for 6 weeks, three times a week and what a big difference it made, but now I have to stop because my insurance doesn't want to cover it . My derm is going to write a grievance letter to get my insurance to cover whatever is left of winter. Last July 1st the person who gives me shots mentioned to me to go without my wig if I could and get out in the sun. Well she was right, and now I can't wait for summer again, because the summer sun gives you more than the phototherapy does but, doing phototherapy is better than nothing right now. My hair started to get more filled in and looking normal again and a little wavy too . But as bandanagirl says - it's working for Patchy and me but may not work for her, and I'm sorry, wished the sun would help everyone with AA or AGA of any kind. K.
Subject: Re: Alopecia and Claritin
Date: Sun, 5 Jan 2003 17:47:58 -0800
Message 5 in Discussion
No, the Claritin did not help my alopecia, nor did it help my allergies. I wish you luck if it is helping! What a great thing that would be!! Yea!!
J.
Subject: Re: Alopecia and Claritin
Date: Sun, 5 Jan 2003 17:32:41 -0800
Message 4 in Discussion
You don't say whether the claritin actually helped you at any point in the four years you took it, but the implication is that you didn't see any improvement? My son's doctor also prescribes Claritin for alopecia and it seems to be helping, but who really knows.
Subject: Re: NewUserFromQuebec
Date: Sun, 5 Jan 2003 15:48:48 -0800
Message 4 in Discussion
Hello, i want to thank you for writing to me about your medical questions :) One day I might be the one that finds the cure for alopecia! Hopefully, this is where my carreer is headed! Prednisolone and prednisone are practically the same thing. The side effects, in fact, are sometimes not worth the actual benefits. A doctor should never prescribe it to a patien who is in poor health, with underlying conditions such as high blood pressure, obesity, or maybe sometimes bone density problems. I've read in another message that said that prednisone wasn't a good drug. Prednisone is one of the MOST IMPORTANT drugs in the medical practice, it helps MILLIONS of people to lead normal lives. It prevents alopecia from pregressing too rapidly and may help stop hair from falling out. In my case, the prednisone did make me loose muscle mass, but I do go to the gym everyday, follow an exteme diet and am in excellent health! I run everyday and try my best to keep healthy! If someone does this, there is nothing that prednisone can do, the drug dosent make you fat, it makes you want to eat more, you just need to have self control and everything will be fine. There are other problems that can arise, such as hip necrosis, *ouch* its not very fun, but does happen in rare cases. The immunotherapy treatments ARE effective but are very diffucult to deal with, sometimes. NOT many dermatologists are trained to do it, they may pretend that they know what they are doing, but in most cases, it may be the first, 2nd or 3rd patient that they do! it requires MUCH MUCH MUCH experience to get the results. If they dont know what they are doing, they could burn your skin, or make it too uncomfortable for you to lead a "normal" life. The substance you are refering to is Diphenylcyclopropanone DPCP!! hehe, its sometimes hard for people to get the letters right! heheh, some doctors call it Diphenciprone because they don't know the rest! hehe, If you have a partner, He/She might get iritated when you go to bed because the substace iritate
bothersome to some people and you have to realise that you WILL have to change some aspects of your life. Treatments are usually every week, while the doctor has to find the adequate concentration to keep the treatment effective. It will work, if it does, after several weeks of treatment! You MUST keep out of sunlight after treatments, and if you wear a wig, unfortunately, you scalp most likely will be too iritated for you to wear it :( thank you for you question, if you need more info, please let me know F.
Subject: Re: NewUserFromQuebec
Date: Sun, 5 Jan 2003 15:19:18 -0800
charset="iso-8859-1"
Message 3 in Discussion
hi and happy new year ,ive aa for about 11mths now and recently my hair stopped growing and my eyebrows(oh NO!!!)have fell out and ive started to lose hair downstairs also,so now im virtually hairless. My doctor has said he would not put me on prednisalone(hope i spelt it right)because it had unacceptble risk with it,instead he has sent me to a dermatologist that will use dccp treatment.Have you heard of this? Its very difficult for me to cope with this horrible illness,it just goes from bad to worse,although i havent had it that long my appearance has changed big time and as you know you can lose all self confidence. So im praying to the hair gods for its swift return,but if you know about DCCP treatment let me know pls and also noting what you study can you tell me why the doc want put me on predislone.
S. age 28 with aa/at
Subject: Re: 7 Month Update on No-Soy Diet
Date: Sun, 5 Jan 2003 15:01:44 -0800
Message 23 in Discussion
Here is the evidence I promised linking soy to alopecia....
The first link is from the medical college of Georgea ..It shows that patients with alopecia have increased cd4 and decreased cd8 t-cell activity ( cd8 are the suppressor t-cells) In other words the immune system is turning on..but not turning off.
http://npntserver.mcg.edu/html/alopecia/PreliminaryStudies/OurPreliminaryStudies.html
The second link is research on soy..and it shows that soy increases cd4 and decreases cd8 t-cell activity. Isn't it ironic that the same t-cells are affected!
http://www.pnas.org/CGI/content/abstract/102650199v1
The third link shows you all about hormones and what they are. They are the chemical on/off switches of your immune system. The hormone receptor turns target genes on and off.
http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/H/hormones.html
The fourth link shows the mineral deficiencies in people with alopecia. Alopecia Areata patients are lacking in Vitamin A, B2, B5, B12, Biotin, Inositol, iron, Magnesium, Zinc, and have too much Selenium.
http://www.ann.com.au/nutrition/disorder.htm
The fifth link has an interesting article on soy. It shows the 5 primary TOXINS that are in soy. They are, Allergens, Phytates, Protease inhibitors, Genisten, Goitrogens.
http://www.johnleemd.net/articles/soy-01.html
The sixth link is full of articles on the research on soy. Read the last article about reducing phytate content.
http://www.pediatrics.org/cgi/content/abstract/101/1/148?ijkey=89AmwSXB/QddY
The seventh link is a complete draft report By the government of UK food standards agency on phytoestrogens and soy.
http://www.foodstandards.gov.uk/multimedia/webpage/phytoreportworddocs
Please read all these links. I am sure after reading all this you will be convinced. If I made an error on any of these links, please let me know and I will correct them
What is hair?
Curly Hair
Biology of hair growth and development.
The phenomenon of hair loss.
Methods and treatments for hair loss and baldness.
Drugs and hair transplantation surgery for hair loss and baldness.
Hair loss linked to other health problems
Baldness by choice and fashion
Alopecia info.
Alopecia treatment info.
Alopecia treatment info.
Hair care info.
Hair loss and alopecia research articles: abstracts and source links.
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